Sunday, June 28, 2009
Friday, June 26, 2009
I've become quite addicted to blueberry pommegranate juice. Really, it's yummy.
Have you discovered the Redbox? It's a DVD rental vending machine. The movies are good new ones (that I missed in the theater) that rent for $1 a day. You can even reserve them online! I've seen them around but have been leery that it was some sort of credit card scam. So far I've rented "He's Just Not That Into You," which I highly recommend and "Taken." This is another really good one. I can watch them late at night on my computer with head phones on the cheap.
I've got 20 hours of Respite to use by July 1st. Yesterday I was able to do some chores and escape the house. This afternoon Mark and I are catching a matinee of the "Hangover." I'm giddy!
Tomorrow my new and super talented friend Donita is doing a photo shoot with my family. Sophie turns 2 on July 2nd (her golden birthday) and Helena is 6 weeks old, plus I just wanted new shots. Thank you Grandma Betty for the timeless gift! Check out Donita's work here. I'll post up as soon as they are ready. She was my inspiration for the flower shots in the last post, but as you will see, I've got nothing on her.
I'm happy to update that after 6 weeks, Helena is starting to really come to life. I'm still limiting my dairy intake as that seems to help her gas problems as a nursing baby. That and simply growing and her system maturing has helped tremendously. She no longer is in constant pain in her belly. Two nights ago she even slept from midnight till 5am! I'm doing better about putting her in her own bed instead of letting her sleep next to me, which will be better for everyone in the long run. The biggest news is that she's begun smiling at least once a day. We've even heard a few coos. By far and away this child has been the hardest and it has been a shock to the system. This is especially after being spoiled by Miss Sophie who has been a 5 tiered cake comparatively, despite her feeding issues and surgery early on. So, I'm happy to report that Mom and baby are falling madly in love and that she's becoming more alert and gorgeous by the hour.
What else? Sophie's wonderful PT relocated and we are so so very sad to see her go. She has been brilliant with Soph and will be hard to replace. Fortunately, we were able to slip in another PTs schedule and will pick up again without missing a beat in July. Thank you so much Cory for your kindness, patience, skill, and passion for my daughter.
OK, enough stalling. I've got to get back to the laundry. JRS - Out!
Monday, June 22, 2009
Thursday, June 18, 2009
We loaded the CRoutan and made it on time, even riding a shuttle from the parking lot to the site. The place was packed with a sea of red supporters. The kids were AWESOME the whole time. Judy was an angel, hanging out with us and our friends Bethany and her son Jeffrey from Sophie's DSC developmental playgroup and his big brother Mark. We had a concrete floor picnic for the oldest kids while the youngest kids rode in style in their strollers. Helena slept through the whole thing. I think the roaring crowd was a bit much for her.
The turnout was amazing and the speakers were great, as usual. This is a wonderful community and I believe we made an impact on the governor. I guess we'll know soon enough as there is a special session next week.
Below should be local tv coverage of the press conference. If the embedded video doesn't work, click here.
Here's a short video of the energized crowd before the press conference started.
Wednesday, June 17, 2009
3D glasses from the movie Up (Mark & Alexander give it 2 buttery thumbs Up)
A press conference will take place tomorrow at 3102 W. Clark in Champaign. Please, please plan to come if you can and wear red. Arrive by 11 to be ready for the 11:30 press conference. Gov. Pat Quinn and DSC CEO Dale Morrissey will be speaking. Then, plan to attend the rally on Saturday. (click the flier to enlarge)
STOP CUTS TO HUMAN SERVICES BY SUPPORTING AN INCREASE IN TAXES/REVENUE.
GET INVOLVED (VERY TIME SENSITIVE)
1. Attend the press conference with Gov. Quinn and Dale Morrissey, DSC-CEO on Thursday, June 18th at 11:30, arrive by 11 at 3102 W Clark, Champaign.
2. Attend face to face meetings with legislators: Friday, June 19th at 1:00 –Representative Shane Cultra—Savoy Municipal Building—Tomaras Ave., Savoy Monday, June 22nd at 10:00—Senator Dale Righter—88 Broadway, Mattoon
3. Attend Community Rally on Saturday, June 20th at 11:30. Please send this on to family, friends, and coworkers!
4. Send out our very own DSN flier to all of our friends and family urging them to make phone calls and write letters (email me for a copy in Word)
5. Listen to the radio show Midwatch which airs from 6-8pm on WEFT 90.1 FM following the show Disability Beat that will host Dale Morissey of DSC and Mark Klaus of Charleston Transition Group for an extended conversation about the potential impact of the Human Services Cuts. Call in and have your voice heard!
Please also consider contacting:
Senator Mike Frerichs, 45 E. University Suite 206, Champaign, IL 61820, 217-355-5252, http://www.mikefrerichs.com/
Representative Naomi Jakobsson, 206 N. Randolph Suite 120, Champaign, IL 61820, 217-373 – 5000, Naomi@naomijakobsson.com
Representative Chapin Rose, 240-W Stratton Office Building, Springfield, IL 62706, (217) 558-1006, (217)348-7673, email@example.com
For more information, read the following letter from Dale Morrissey, DSC CEO, below:
(LETTER TO THE EDITOR)
Last year, Developmental Services Center (DSC) served over 1,400 children and adults with developmental disabilities and/or delays, despite an 11.65% budget cut in state funding. If the proposed state budget is enacted on July 1st, DSC will experience an additional 50% cut in state funding, resulting in up to $3.9 million dollars. These proposed cuts will be catastrophic for families who rely on daily services for their loved one, and even more so for individuals receiving services that have no family to turn to when the state turns their backs on them.
All DSC services are at risk for either reduction or elimination, which include: Early Intervention, Adult Day Program, Employment Services, Respite, Clinical Support, Home-Based Support and Residential Services including group home and apartment services support. Champaign County’s most vulnerable citizens are now at greater risk of homelessness, vulnerability/victimization and for some, institutionalization.
Individuals with developmental disabilities and their families deserve a state budget that PUTS PEOPLE FIRST! For years, lack of funding has led Illinois to its rank of “51st and Failing”; despite this already gross negligence, Human Services is being targeted again.
DSC has the passion and energy to fight for Illinois’ most vulnerable citizens. We are contacting legislators, media, parents and guardians. We are asking the community to join our campaign. Please join us in these efforts and let our voices be heard! We are a community in crisis and we need your help now, more than ever!
Chief Executive Officer
Developmental Services Center
Sunday, June 14, 2009
On the day she was born, Sophie had surgery to correct her duodenal atresia. That day I began pumping and didn't stop for many months. At 6 weeks old, she finally got the hang of nursing and we said goodbye to the bottle. Unfortunately, she stubbornly refused from that point onward to take a single bottle. My supply was much greater than her demand and it took a while to balance out (plus 2 rounds of mastitis). We ended up with an entire freezer full of milk that she didn't use. After they expired, I made Mark throw it all away as I couldn't bring myself to do it.
As any Lactivist can testify, pumping is work. Yes, the new pumps are wonderful and work quite well. However, it takes time to set up, pump, store, clean, and sterilize. Going to all that work for 9+ months only to have it thrown away is a crying shame.
I've been avoiding the pump so far with Helena. She's 4 weeks old now and feeding is well established, so today I pumped for the first time. aWOosh aWOosh an old familiar sound. Hopefully Helena will take a bottle from her dad or sitter and then perhaps I can catch a break or (gasp) leave the overlord behind to go out once in a while.
Monday, June 8, 2009
Thursday, June 4, 2009
Bottom line, he says reflux meds are not needed, she's colicy and will outgrow it in weeks or months, Mylicon drops and gripe water is fine if I want to continue to use them, and take her on walks in a baby carrier or drives in the car.
Monday, June 1, 2009
Yes, this is the actual key. The panic button end goes in the key hole. Its all digital and stuff.