tag:blogger.com,1999:blog-4721023065428702627.post1328665572624979611..comments2023-10-30T11:29:14.199-04:00Comments on ReJenerationS: Laryngomalacia, Tracheomalacia & Down syndromeJRShttp://www.blogger.com/profile/05295890734305677152noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-4721023065428702627.post-88509493343593582822011-05-23T09:33:48.356-04:002011-05-23T09:33:48.356-04:00As a new mom of a Colby with DS, we have been expe...As a new mom of a Colby with DS, we have been experiencing some breathing problems more pronpouced when feeding and with congestion. Went for a swallow study and they questioned the possibility of tracheomalacia. Colby was doing better and now seems to e worse again, so back to the Doctor to discover if he truly has tracheomalacia. Glad they grow out of it but hope it's sooner than 18 months (he is only 3 months)!Anonymoushttps://www.blogger.com/profile/16676204046563645187noreply@blogger.comtag:blogger.com,1999:blog-4721023065428702627.post-30581081066650857322010-09-24T18:29:42.534-04:002010-09-24T18:29:42.534-04:00My son is now 5 years and still is struggling with...My son is now 5 years and still is struggling with laryghomalacia. I have several sleepless nights nabulising wilth saline relives him a lot - temporary as they may say but it is an option for us mothers with children with DS. I wish your daughter well. DoreenAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-4721023065428702627.post-61778448113935375952009-08-21T15:51:35.781-04:002009-08-21T15:51:35.781-04:00I am a physician assistant student working on a re...I am a physician assistant student working on a report on tracheomalacia. Your images are fantastic. Would you mind if I shared them with my fellow students? Please contact me via email awillingham04@gmail.comAmyhttps://www.blogger.com/profile/04477097843528959183noreply@blogger.comtag:blogger.com,1999:blog-4721023065428702627.post-46186207774959166312009-01-29T14:48:00.000-05:002009-01-29T14:48:00.000-05:00As a mom...I know what you go through with your da...As a mom...I know what you go through with your daughter. I have a 17 yr. old with dS and he has tracheomalacia since he was born. Things that could cause other kids to get a cold can cause our kid's airway to swell and get really sick. Our insurance just bought our boy a hospital to keep him upright at night and that has helped. I will say a pray for your daughter at night too...the pictures on your sight are adorable! They grow up soo fast! Have a good day! Blessings, Corytawanda28https://www.blogger.com/profile/06042315104717882562noreply@blogger.comtag:blogger.com,1999:blog-4721023065428702627.post-64171522432795219612009-01-25T23:03:00.000-05:002009-01-25T23:03:00.000-05:00I just found your blog through Sarahs. your kidos ...I just found your blog through Sarahs. your kidos are so cute, and I'm glad the procedures went smooth. Lacey and JaxLaceyhttps://www.blogger.com/profile/03321275110857561824noreply@blogger.comtag:blogger.com,1999:blog-4721023065428702627.post-84289447409875648462009-01-25T13:52:00.000-05:002009-01-25T13:52:00.000-05:00Well, I'm glad the testing went well, but too bad ...Well, I'm glad the testing went well, but too bad they can't do more for her... hopefully winter will be short (Maybe?) and better weather will help, too?Michellehttps://www.blogger.com/profile/04082807589185886275noreply@blogger.comtag:blogger.com,1999:blog-4721023065428702627.post-52135249787841033882009-01-25T09:36:00.000-05:002009-01-25T09:36:00.000-05:00Oh no. I wonder how common this is in our kids act...Oh no. I wonder how common this is in our kids actually. I guess you'd never know unless you did the tests. Interesting! I hope Sophie grows out of it fast!Bethanyhttps://www.blogger.com/profile/09481397897364739480noreply@blogger.com