Wednesday, May 12, 2010

Safety Conference

I am pleased as punch to announce that our local
Down syndrome group is hosting a super fantastic half day conference in June.
Please help us promote it & I hope to see you there!
Click the images below to review the brochure or download it at: http://www.champaigndsn.org/
facebook users can find the event under:
Half Day Conference for Persons with Intellectual Disabilities

Tuesday, May 11, 2010

Two Cool Programs

Circle of Friends

and
Everyone Deserves a Shot

Visit msnbc.com for breaking news, world news, and news about the economy

Saturday, May 8, 2010

The Sophinator


2 quick things I just had to share. A few days ago we were watching the Signing Times. During a song, Sophie got up and left the room. I thought that was odd because usually she LOVES watching these DVDs. The song was about hats. Sophie returned to the living room with her daddy's baseball cap in her hands. She sat down and put it on and continued watching the show.

Do you understand what I just typed? She understood the song was about hats. She remembered that there was a hat in another room. She went into the other room and retrieved it from up high on the table, came back and put it on.

When I realized what I had witnessed, I laughed and cried and clapped and hugged her so tight.

Then just now her daddy put a baseball game into the Wii. As it was loading, she went up to the tv and (for the 1st time) said "baseball."

Somebody come peel me off the floor! Best Mother's Day present - EVER!

Friday, May 7, 2010

The Planner

(said with chest puffed out and cape flapping in the wind). It's a lame super hero name, (or maybe super villain name) but it is the one I claim for the time being. My time is spent planning our lives here in CU for the next 6 weeks, planning Sophie's IEP (currently in progress), planning her transfer, planning where we will actually live in our new time zone, planning the packing and moving, planning summer VBS/swimming/baseball/etc. lessons (here/PA?), planning a superfantasticamazing conference on safety and violence prevention for people with developmental disabilities, their loved ones, and professionals, and planning my girls' birthdays. Planning on how to keep the wine consumption to a minimum and not gain 20 lbs.

The latest news is that a house purchase fell through and I believe it was a blessing. We will go back to my original plan of renting for at least a year to get to know the area before committing a vomit-inducing amount of money. FINALLY (through my tireless agent's research, err, BFF from all the way back to the 6th grade, Mrs. Darcy) we appear to have a house - in the top school district - for the right $ - and the right time frame! (per FAXed lease tonight from eccentric, highly thorough landlord who looks like the Gortman's fisherman)! Knowing you won't have a place to live in less than 2 months can be quite the stress inducer, let me tell ya!

The safety conference is really coming along well. I'll post the brochure soon, but sufficet to say, it is a melting pot of my 2 life's passions. We have 5 tracks of sessions for all members of the family, regardless of age or ability. Track 1: For parents, guardians, and professionals, Bodies, Boundaries, & Sexuality: The role of Sexuality Education in Sexual Abuse Prevention Supporting Healthy Sexuality as a strategy for Sexual Abuse Prevention, by Terri Couwenhoven, M.S. Track 2: For ages 0-4, Childcare mixed group for children with and without disabilities in a really amazing indoor play ground. Track 3: For ages 5-11, mixed group for children with and without disabilities, Heroes In Action® School Smarts Anti-Bullying Training Program, by Ray Amanat. Track 4: For ages 12 and up, for individuals with intellectual disabilities, Speaking Up For Safety: A Self-Advocates Workshop on Sexual Abuse, Shirley Paceley of www.bluetowertraining.com. Track 5: For siblings of individuals with intellectual disabilities, ages 12 and up, Sibling Workshop, by Dr. Laurie Kramer. Also an exhibit hall with community organizations and resources/services on safety issues.

Have I mentioned that this conference is 2 days before we move?

Doesn't matter. It is my passion and I am so proud of it.

So, lately, between the packing and planning, I've distracted myself with the upcoming birthdays of my 2 girls. It's hard to believe that Helena will be 1. I'm so behind on all the posts I've started and left unfinished on her developments. Sophie will be 3 soon as well. Just how did that happen? How did my baby girl become a full fledged kid?

During our next trip back to my hometown in a few weeks we will have a bash for the girls at my little sister's house. The theme will be the children's cartoon Ni Hao, Kai Lan (a little girl of Chinese American descent) that all 3 of my kids LOVE. I've gone nuts with the planning. More on that soon.

Downside Up Expat Charity for Ds in Russia




The original story HERE.

The Downside Up charity seeks to improve the life of children who suffer(?) from Down’s syndrome in Russia.

Please leave your thoughts in the comments.

1: We all know that people with Down syndrome do not suffer from it.

2: I wonder about their figures as they seem low.

3. So much needs to be done to change societal attitudes and increase programs and services to improve the lives of people who happen to have Ds in Eastern Europe. Despite some of the problems I have with the language, I'm thrilled at the idea that this type of work is being done.

Wednesday, May 5, 2010

Top 20 Reasons Why

Moms of kids with special needs ROCK: click HERE.

My #20? Because we are here to hold each other as we walk through the fire. We give back, educate, and help each other, from those new on their journey, to those experiencing a new and frightening diagnosis, or who are simply having a bad day. We are here and understand in a way that others simply cannot.

Saturday, May 1, 2010