Wednesday, October 6, 2010

Hallelujah & a Deep Breath

In the mail today I received confirmation that I have been accepted into the Temple University - Institute on Disabilities - Competence and Confidence Partners in Policymaking for Families with Children in Early Intervention program (birth - preschool). Let's just call it what everyone else calls it, C2P2 EI. I applied a couple of months ago with 3 of my new amazing friends in the Philly area. There are four 2 day leadership development training sessions starting in October. You thought I was dangerous before? Ha! I'm so excited.

In an email from Special Olympics today there was a link to a post written by Jenni Newbury about her younger brother Jason who has with Down syndrome. It is a wonderful post and I encourage you to check it out HERE.

S. 2781, the "Rosa's Law," which changes references in many Federal statutes that currently refer to "mental retardation" to refer, instead, to "intellectual disability" This is a major victory for us in the movement for inclusion, acceptance, and respect. You change the words to change the minds to change the hearts. I believe Tim Shriver said something like that.

I've been working on a post about our Buddy Walk and Family Fun Day which took place this past October 3rd. In the meantime you can check out the slideshow of photos taken by my beautiful friend Cecilia HERE. Team Sophie represents at 4:35 & 13:20, or watch the teaser I made below. If you don't see it, refresh the page or click HERE.
Our story about The Beginning will continue shortly. I've written the next installment but I just can't put it up yet. Going back to that time has been very difficult for me. If I am to be accurate in the telling of the story, I need to be honest. Sometimes the truth is dark, ugly, and shameful. Unburying it has brought it all back. I need to let it sit just a while longer. I have greatly appreciated the positive feedback as I share this very personal story. Knowing that you are out there and reading and that it has moved you even a little bit helps me tremendously. Until I can find the courage to hit "publish" there is a song I just can't seem to get out of my head.

Thank you for reading, for your comments here and on fb, and for your patience.

I've done my best, it wasn't much
I couldn't feel, so I learned to touch
I've told the truth, I didn't come here to fool you
And even though
It all went wrong
I'll stand right here before the Lord of Song
With nothing on my tongue but Hallelujah
(click HERE for the song)

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Cate said...

I haven't been able to write about Abby's birth at all. It's just too hard. I keep thinking I will, but...not so far.

Congrats on Temple! that looks awesome.

JRS said...

Yes Cate it is unbelievably hard. Thanks for reading & commenting.

Becca said...

I hope you'll find that the re-telling will be cathartic. I'm pretty sure you've never received negative feedback from unwanted sources on your blog, so just know that we're all there to support you and listen. In your own time, Jen, when you're ready.

Congratulations on the Temple program! That's an amazing course! I wish we had something like that here. I bet I could get so much out of it. Please pass along your brilliant new knowledge as you get it!

Terri said...

As a parent of a 16 year old who has Down syndrome I enjoy your blog very much. As a Partners in Policymaking graduate (first of the EI program, then, years later, of the regular program) in NY I say CONGRATULATIONS!!! It is a great program, you will learn tons!